Learning from the experience of BME cancer patients – Communication


>>Lord Victor Adebowale: My name is Lord Victor
Adebowale. I’m going to talk to you about ‘Communication’.
Communication is critical, it saves lives. It can make lives better, it can also do the
opposite. It’s not just about listening, it’s evidence that you’ve been heard.
So whether they’re a clinician or psychologist, they have to be sharing their knowledge with
you so that you can make decisions together and go on this journey. I think it’s really important that you watch
this film. It’s an opportunity to learn, and apply that learning in your work to improve
the experience and outcomes of BME cancer patients.>>Lorraine Marke: When I was diagnosed with
breast cancer, I was immediately referred to the Breast Cancer Nurse. You know, one
of the things was that she said, ‘Yes, if you need support, I’m here.’ And then
after that, I didn’t see her. I remember one day I phoned because I was
a bit concerned that I had pain in my hips, and worried that the cancer had come back
and it was, ‘Go to your GP.’ The Breast Cancer Nurse should’ve been someone
who I felt very comfortable approaching, and didn’t end up feeling like I was being a
burden on the occasion that I did call her.>>Zejnil Aljie: My wife had breast cancer,
no-one referred her for any investigations, to find out why, what, why her arm is so painful?
She finally was referred for further investigations when she saw the GP on so many occasions,
and they probably got fed up of her bothering them all the time, so in the end they just
referred her. Once she had the scan, it showed, that she
had secondary metastasis. We don’t know why it took so long for everything.>>Sarah Moss: What would make a good experience
when it comes to having an interpreter in the room, they would need to understand what
we’re going to be talking about, so speaking to me first, speaking to the consultant first,
speaking to the patient. You don’t have the same relationship with
somebody if you are communicating entirely through an interpreter. So, if they can talk
to the patient after we’ve finished, but we’re still around so they can then ask
us further questions if they need to, so just, make it feel a little more relaxed. More like
a conversation rather than, ‘This is what’s going to happen.’>>Geary Warmington: What she told me was that
I’d be very unlucky if I ended up getting prostate cancer. Somebody presenting themselves
to their GP with such a strong family history of prostate cancer. Two brothers out of four,
and my father, to me is really overwhelming evidence that something should’ve been done
earlier.>>Dr Rose Thompson: I wrote two reports about
prostate cancer, and inequity in the black population with black males and yet, I speak
to colleagues who know nothing about the fact that black men are two to three times more
likely to be diagnosed, and in my area when we started this, were three times more likely
to die.>>Geary Warmington: After I was told about
the high PSA reading, things started to happen quite quickly. The earlier on that it’s
caught, means that it’s contained within the prostate. You know, things can be done.>>Lindsay Thompson: The ability to communicate
and to ask the right questions, patient can make an informed decision about what they
do. And I think, being able to make an informed decision is part of the healing process as
well.

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